FOR IMMEDIATE RELEASE
ACHILLES ATHLETES INSPIRE MIAMI MARATHON RUNNERS
MIAMI -- Frances Alvarez has endured the effects of an agonizing brain
tumor. A car accident changed Raphael Martinez' life in the blink of an
eye.
But both Dade County residents have a positive outlook on life and will be
together at the start line of the Miami Marathon and Half Marathon January
24 thanks to their participation in Achilles International, an organization
devoted to providing opportunities for the disabled through participation
in mainstream sporting events.
More than 50 Achilles athletes are expected at the start line for Sunday's
race, with at least 40 signed up to cycle the entire marathon. They will go
off at 5:45 a.m., just before the thousands of able-bodied runners.
Domestic entries from athletes with disabilities have come from as far as
California, with international participants from France, Germany and Italy
already signed up. More than a dozen members of the national Freedom Team
will also participate.
Alvarez and Martinez train weekly with a South Florida Achilles group at
the Homestead Air Reserve Base, and are looking forward to participation in
the Miami Marathon and Half Marathon weekend activities. Alvarez is taking
part in the warm-up Publix Tropical 5K race on Saturday morning and
Martinez will hand-cycle the full Marathon on Sunday.
Though most races in Miami are uniquely flat, no participant will have as
up-hill a battle as the one Alvarez faces every day of her life.
When she was 10, doctors diagnosed the now-24-year-old with a polycystic
astrocytoma brain tumor. Three years after she arrived from Puerto Rico
with her brother to join her father in the U.S, life would never be the
same.
Surgery removed most of the tumor, but because it developed on the right
side of the brain stem, doctors couldn't remove the entire mass. They
performed a partial reception on the tumor, but a post-operative stroke
resulted in the left side of her body not being able to perform basic
functions -involuntary shaking has been another consequence.
"A stroke usually causes that part of your brain to die, but with me it
messed up my brain signals - they are turned around," she says.
The part of the tumor that remained was treated 11 years later with a
radiation regimen in hopes of it shrinking. But common symptoms remain
today: vision and hearing loss, extreme migraines, memory loss and
seizures.
In addition to her non-functioning left side, which includes the absence of
sight in her left eye, Alvarez also has limited vision in her right eye,
and is considered visually impaired.
Still, she was able to attend North Miami Beach High School until her
senior year when severe symptoms caused her to have to be home schooled in
order to graduate.
"My life has been in and out of hospitals," she says. "Sometimes I just
want to be at home lying down, but I have to get out and take my mind off
of it, even when the pain is a 10. I've had migraines that last all day and
won't go away. The sounds of plates, people clapping... makes my eardrums
shake."
Alvarez views herself as the ever-forgetful Dory in the movie Finding Nemo
- always swimming upstream with the outlook that the 'glass is always half
full'.
"I'm the little blue fish," says Alvarez. "I forget everything, but I just
keep swimming. "I don't see very well. I don't hear very well. I don't walk
very well. But don't let anything stop you. It's only a little movie but I
think about it every day.
"Right now they don't know what to do with me. My case is that rare. They
can't do anything else but manage the pain and keep it at a level where I
can function. They call in people and they don't know how to deal with it.
In reality there's nothing they can do anymore."
Over a year ago, Alvarez met former Achilles South Florida Regional
Director Chris Holcomb through "Goalball," a team sport designed
specifically for blind athletes. Holcomb extended an invitation to join
Achilles.
Alvarez has completed four half marathons and three 10K races in which she
requires a pair of guides because of her visual impairment. One guide on a
bicycle stays to her right - the plastic disks in the bike's spokes help
Alvarez know where she is at all times. The other guide goes ahead and
clears a path.
"I have to tape my hand to the handlebar because I can't hold on with my
left hand," she says. "But I love being able to get out and see what I can
do."
Because of the number of participants and safety issues in the Miami
Marathon, Alvarez will participate in the Tropical 5K run that starts on
Watson Island and ends at the tip of South Beach.
The 5K will present a monumental challenge for Alvarez, who will continue
to need a pair of guides to navigate the race. She's not sure how long it
will take her to get to the finish line. "I can't run because of my legs,"
she says. "I walk pretty slow."
During the main event on Sunday, Alvarez will be cheering on her Achilles
teammates from the sidelines.
Raphael Martinez will be one of them. His life changed abruptly on Feb. 11,
1995, when the then 20-year-old flipped his car while running late for work
in Hesperia, Ca. He has not walked since.
"I was ejected and when I landed I twisted and ended up facing down," he
says. "The lower half of my body was facing up. They took me to the
hospital and put me back together again."
Twenty years later, Martinez, now 41 and living in West Dade, finds himself
celebrating when February rolls around. The month is his birth month, but
it has taken on even more meaning because of the accident.
"I celebrate the whole month," he says. "It's (the accident) always going
to be there. It was a really crazy experience. It makes me feel weird to
think that I've spent half my life in a wheelchair. I don't even remember
what it was like to walk.
"But I'm living life like any other person. I don't feel or see myself as
disabled. I was reborn that day as this Raphael Martinez. That replaced
the other Raphael Martinez. The whole thing has made me a better person. It
opened my heart to do a lot of good to other people."
The transformation is what caused him to leave a 14-year job as a
telecommunications technician at Miami International Airport in 2014.
Martinez wanted to do more with his time.Now, he is a part-time greeter at
American Airlines Arena, and has the time to immerse himself in a number of
volunteer opportunities. There's a mentoring program at Jackson Memorial
Hospital where he part of a support system to patients adjusting to life
with spinal cord injuries. He volunteers with Sabrina Cohen Foundation,
which has teamed up with the City of Miami Beach to improve beach access
for those with disabilities.
The break from fulltime work has also given Martinez the time to train with
Achilles, where has developed a hand-cycling "bug" over the last year. The
Miami Marathon will be his fourth marathon - last month he competed in the
Palm Beach Marathon.
"My goal is to be able to do New York, Boston, LA, the big ones. That's
what I want to do," he says. "My goal is to get out there, get off the
chair and into the hand-cycle. I'm trying to live the rest of my life.
Sports is as good an outlet for people," says Martinez. "There is life
after a spinal cord injury."
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